Congratulations to the PE-CGS Research Centers Count Me In, OPTIMUM, COPECC, and WU-PE-CGS on being awarded the Community Liaison-based Patient Engagement for Cancer Genetic Education and Research Participation Administrative Supplement.

The purpose of this trans-NCI Funding Opportunity Announcement (FOA) is to:

• Promote new cancer disparities research among investigators who do not normally conduct it
• Encourage the partnership of experienced cancer research investigators with cancer disparities-focused researchers
• Accelerate and strengthen multi-disciplinary cancer disparities research in wide ranging areas

Cancer disparities research includes, but is not limited to basic, translational, behavioral, observational, interventional, environmental and population research studies that address the adverse differences in cancer incidence, prevalence, mortality, survivorship, burden and/or response to treatment in racial/ethnic minorities and/or underserved population groups.

Each Research Centers' project focus is listed below:

• Count Me In - Strengthening Hispanic/Latino Osteosarcoma Patient Engagement in Genomic Sequencing Studies
• OPTIMUM - Optimizing Engagement of Latino Communities to Promote Equity in Low Grade Glioma Genomic Research (OPEL)
• COPECC - Increasing Hispanic Cancer Genetic Education & Research Engagement
• WU-PE-CGS - Community-Centered Enhancement of Cancer Genetic Research and Referral Approaches

To learn more about these administrative supplements to support cancer disparity collaborative research, click here

A big congratulations to Liz Salmi on her recent publication in The New England Journal of Medicine. The perspective piece discusses her experience as a patient with grade 2 astrocytoma, including a perspective from the operating room and unlikely familial links.

Liz Salmi is a patient advocate and co-investigator of the OPTIMUM Research Center. Read the article here

The Network was pleased to host the 2022 Annual Participant and Investigator Meeting on November 15th and 16th at The Ohio State University. The meeting hosted discussions on the future of the Cancer Moonshot; participant perspectives; insights on the goals and accomplishments of each research center; fostering collaboration in research; and developing shared values for the Network. We were grateful for the presentations by Dr. Dinah Singer from NCI and Dr. Danielle Carnival from the White House Office of Science and Technology Policy.

We were happy to include virtual participants in all of the activities and presentations throughout the meeting.

Schuster ALR, Crossnohere NL, Paskett J, Thomas N, Hampel H, Ma Q, Tiner JC, Paskett ED and Bridges JFP. Promoting patient engagement in cancer genomics research programs: An environmental scan. Front. Genet. 2023;14:1053613. doi: 10.3389/fgene.2023.1053613

Schuster ALR, Crossnohere NL, Bachini M, Blair CK, Carpten JD, Claus EB, Colditz GA, Ding L, Drake BF, Fields RC, Janeway KA, Kwan BM, Lenz HJ, Ma Q, Mishra SI, Paskett ED, Rebbeck TR, Ricker C, Stern MC, Sussman AL, Tiner JC, Trent JM, Verhaak RGW, Wagle N, Willman C, Bridges JFP, for the PE-CGS Network. Priorities to Promote Participant Engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network. Cancer Epidemiol Biomarkers Prev. 2023;32:4(487-495). doi: 10.1158/1055-9965.EPI-22-0356

Rebbeck TR, Bridges JFP, Mack JW, Gray SW, Trent JM, George S, Crossnohere NL, Paskett ED, Painter CA, Wagle N, Kano M, Nez Henderson P, Henderson JA, Mishra SI, Willman CL, Sussman AL. A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics Research. JAMA Health Forum. 2022;3(4):e220603. doi:10.1001/jamahealthforum.2022.0603

Schuster, ALR, Hampel H, Paskett ED, Bridges JFP. Rethinking patient engagement in cancer research. Patient. 2022. https://doi.org/10.1007/s40271-022-00604-9

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To sign up, go to the pecgs.org website, click on the 'PE-CGS Member Repository' button in the upper right corner, and select 'Create an Account'. Enter and submit your account information. After creating an account at pecgs.org, please reach out to the Coordinating Center (pe-cgs@osumc.edu) for access. 

If you had an account prior to the new website launch, you do not have to go through this process again.

All PE-CGS Network members are invited to join the dedicated PE-CGS Workspace on Slack. There you will find a general area to chat about topics relevant to whole Network, as well as separate channels devoted to each subcommittee. 

Review the Getting Started guide and learn how to use Slack, if it's new to you. It might be helpful to adjust your preferences for notifications.

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